Episodes

45
Sept. 23, 2020

Episode 45 | Amrita's Story - A son with GERD and feeding aversion

Spit up, and even reflux, can be a common problem for infants, but what happens when it's more than that? In this episode, Amrita shares with Katie, Certified Child Life Specialist, about what happens when a child's reflux became severe and leads to a three-week hospitalization, a feeding tube, and ongoing support from developmental therapists. This is the reality of severe gastroesophogeal reflux disease. Listen to Amrita's story to hear how she has coped with this experience and how her son ...
44
Sept. 16, 2020

Sickle Cell Anemia in Children: A Mother's Advocacy Journey

In this episode, Katie interviews Lisa, mom to Riley. Sweet Riley is a spunky and sweet two-year-old living with Sickle Cell Anemia. Lisa talks about how they knew it would be a possibility while she was pregnant due to the trait being passed down, but they had hoped and prayed to avoid it like they did with their first born, a son who is now nine years old. She says that she can handle the frequent trips to the ER, but watching her daughter in pain is a feeling no mother should have to experi...
43
Aug. 19, 2020

VACTERL Association: What Parents Need to Know About This Rare Diagnosis

Meet Ashlyn, momma to her sweet and smiley boy, Myles. Myles was born with a rare disease that effects his limbs and other parts of his body. These symptoms are known as VACTERL association. As a self-proclaimed "planner," Ashlyn talks about the difficulties of having so many unknowns during her pregnancy and how she coped... and is coping... with their journey. She attributes her strong partnership with her husband and prayer as key components to getting through difficult times. If you'd like...
42
Aug. 12, 2020

Down Syndrome: A Mother's Journey of Love and Advocacy

Meet Maura Senneff, mom to sweet Ryan. Ryan is a thriving 8-year-old boy who has Down syndrome. The amazing advocate by his side, his momma Maura, describes that "zooming out" and looking at things from wide lens helped them turn Ryan's health around. She talks about small changes and the "no limits" attitude their family lives by. If you'd like to follow along with Maura Senneff and her son, Ryan, you can follow their Instagram @Maurasenneff. Guest: Maura Senneff, Released: Aug 12, 2020 Whe...
41
Aug. 5, 2020

Episode 41 | Dominique's Story - A daughter born three months premature

Katie talks to Dominique, mom to Mila, who shares her birth story and NICU experience. Born at just 1lb 11ounces at 26 weeks old, Mila has made tremendous progress thanks to proactive parents, therapies and her momma's un conditional love. Dominique talks about the fear that comes with being an African American pregnant woman in the healthcare setting as well as the impact that sharing her story and community has had on her ability to cope with their journey. You can follow Dominique Pompey th...
June 10, 2020

Anti-Racism and Diversity in Child Life: An Important Conversation

Katie interviews Meg and Jess, two certified child life specialists who also have dual certifications in rec therapy and nursing! These two ladies host a podcast called Don't Worry Bout My Hair and they are your @friendswithfros! We tackle tough questions that are way overdue in the field of child life: Have you received any feedback or comments from black families regarding challenges due to limited diversity of the hospital staff? What's been the most challenging thing about being a black wom...
39
May 26, 2020

Autism Diagnosis: A Mother's Journey from Anxiety to Acceptance

In this episode, Katie, Certified Child Life Specialist, interviews Jessica, mom to two special needs children and one of which who is on the Autism spectrum. Jessica is also an adult clinical neuropsychologist and also hosts a podcast with her husband called, Thriving in the Midst of Chaos. Jessica discusses their journey to get a diagnosis, how they are coping with virtual therapy during covid19, and provides great resources and information about the Autism community. If you'd like to share ...
38
April 27, 2020

When Your Child is Diagnosed with Leukemia: What to Expect

Elizabeth, mom to three girls, shares with us her experience of having a daughter with cancer. In just an hour and a half, her 9-year-old daughter went from a pediatricians office to a cancer ward. Elizabeth discusses her Elizabeth's "out of body" experience, how she was able to identify the "gifts" in each of her girls, and offers wisdom and compassion to others going through similar experiences. We also talk about how the global pandemic of Covid19 and subsequent quarantine has impacted their...
37
April 14, 2020

Episode 37 | Meg's Story - A daughter with Idiopathic Thrombocytopenic Purpura (ITP)

Katie, Certified Child Life Specialist, talks with Meg Casano, mother to Ella who has Idiopathic Thrombocytopenic Purpura (ITP) and also created the nonprofit Medi Teddy which is a stuffed animal cover for intravenous medications. Meg talks about the journey to discover her daughter's diagnosis and how an initial prediction that Ella's ITP would only last six months but has turned out to be a life-long chronic illness. She discusses the financial and emotional challenges that exist when you hav...
36
March 30, 2020

36. Delanie's story - An American in Quarantine in China

In this episode, Katie interviews Delanie, an American and child life student currently living in Beijing. She has been in quarantine since January 27. She shares what quarantine life has been like in China ... the center of the Covid19 pandemic. She shares advice from Chinese families who want Americans to know what the number one thing to have on hand at home is... and she talks about what they say life has been like in quarantine with children. She shares how government and culture have play...
35
March 12, 2020

Episode 35 | Talking to kids about the Coronavirus

When it comes to the Coronavirus, how we inform our children is incredibly important. If you're wondering though, how can we talk to our kids when we as adults still don't know exactly what's happening, you're not alone. This episode covers suggestions for age-appropriate language to use as well as general considerations to keep in mind as you talk to your children. Children are looking to adults for honest, easy-to-digest information. Break it down into a way that they can understand.
34
Feb. 27, 2020

Episode 34 | Katie + Jamie's Top 10 - Heart Month

Katie sits down (across the airwaves) with Jamie Gentille, Certified Child Life Specialist, Director of Child Life Services at Inova Children's Hospital, author and self-proclaimed animal themed yoga enthusiast to talk all things cardiac-life in honor of Heart Month. Jamie is living proof that "cardiac babies" can not only survive, but THRIVE in spite of challenges, surgeries and so much more. Today she talks about the Top 10 things she knows now as a Cardiac Baby turned Bad Ass adult. We cover...
Feb. 14, 2020

Rare Childhood Cancer (atypical teratoid rhabdoid tumor): A Father's Perspective on His Daughter's Journey

This episode is not a cancer story. This is a story about a loving family, a precious child, and how to find miracles during the darkest parts of life. In this episode, Katie interviews Scott Kramer, father to Maddie. Maddie was diagnosed with atypical teratoid rhabdoid tumor (AT/RT) at just two and a half years old and sadly passed away after 8 months of treatment. However, Maddie's story is far from over. Scott and his wife are founders of Dancing While Cancering, a nonprofit that shares joy ...
Jan. 14, 2020

Neuroblastoma: Creating Joy During Childhood Cancer Treatment

In this episode Katie Taylor, Certified Child Life Specialist interviews Tara Geraghty, President and Founder of Making Cancer Fun. Tara is momma to Emily who was diagnosed with Stage 4 Neuroblastoma at just three years old. Tara used positivity and FUN to help herself and her daughter cope with their cancer journey. Tara is an author, webinar host, TedX Talk speaker, and just an all around inspiring person. Follow Making Cancer Fun on Facebook, Twitter and Instagram and follow Tara on Facebook...
Nov. 25, 2019

Child Life Specialists Share Their Expertise: A Roundtable Discussion

This isn't your typical Child Life On Call episode! Katie sits down with two other child life specialists and each talks about their journey into child life, some "child life wins," and the hilarious things that kids have said to them over the years. About twenty minutes in, you'll hear Jamie second guess whether or not she should actually continue with the story she's begun... there are lots of laughs! This is a quick, fun episode that we hope bring you some smiles! Child Life On Call | Inst...
29
Nov. 4, 2019

Episode 29 | Tiger Livy's Story - An interview with Erin Garcia and Betsy Miller

This episode of the Child Life On Call podcast is different that what you're used to hearing, but I fell in LOVE with a book called Tiger Livy and I knew I had to interview the authors. Tiger Livy is the story of a brave six-year-old who inspires empathy, patience, and grit in young readers. It was created for children living with chronic illness but is a great read for any child, even if they're not sick. Co-Authors, Betsy Miller, who experienced her own limitations as a child and Erin Garcia...
28
Oct. 28, 2019

Episode 28 | Lauren's Story - A daughter with Congenital Heart Defects

This is Lauren's Story - A daughter with congenital heart defects on the Child Life On Call Podcast, hosted by Katie Taylor, Certified Child Life Specialist. Little Everly is just over two years and has more fight and life inside of her than most of us could ever dream of. And she's not the only one… prepare to be amazed by big brother too. Their mom, Lauren, shares with us her optimistic perspective even when they've had had their share of complications and setbacks. Lauren mentions resources...
May 8, 2019

Birth Trauma and Prematurity: One Mother's Journey with Two Sons

This episode features Alexandra Ortega, mom of three. She shares the stories of her two son's Theo and Noah. First, we talk about her second-born, Noah, who suffered a traumatic brain injury during his birth at 35 weeks. Next, we talk about her third-born, Noah, who was born at 28 weeks. Alex talks about their NICU experiences, the ups and downs of having children with special needs, and how she copes herself. Alex's words in this episode will resonate with anyone who has a child or loved one wh...
26
April 23, 2019

Episode 26 | Gillian's Story - A daughter with Infant Leukemia

In this episode you will hear from Gillian, cohost of the For Grits and Giggles podcast. Gillian describe her personal journey that includes a cancer diagnosis for her infant daughter and life altering accident that happened a year after she finished chemotherapy. She shares her own personal struggles in coping and how she sought medical help, and she'll describe how meeting another mom whose life paralleled hers turned into a lifelong friendship and a special bond that will stay with her foreve...
25
April 4, 2019

Episode 25 | Meredith Howell's Story - a daughter with a rare genetic condition (BBSOAS)

Meredith, mom to now 8-year-old Lola, shares her experience with her daughter who was diagnosed with Bosch-Boonstra-Schaaf optic atrophy syndrome (BBSOAS) shortly after she was three-years-old. However, their story didn't begin there. As an adventure, Meredith talks about how she and her husband moved to Costa Rica from Indiana after they were married. Lola was born there and shortly after birth, her mom began having questions about her health and development. From infantile spasms to possible ...
25
March 26, 2019

Episode 24 | Jade Marie's Story - A daughter with hypoplastic left heart syndrome

It's a moment that many parents on this podcast have talked about. Your at your ultrasound, pregnant with your child, and all of a sudden the mood of the room changes. Either the technician leaves, or a doctor walks in to "take a closer look" … a million questions and thoughts and fears run through your mind. In today's episode, you will get to hear from Jade Marie from Portsmouth England. At 16 years old and after being told she could never have children, Jade Marie was shocked to learn that s...
24
March 18, 2019

Episode 23 | Stephanie's Story - A daughter with functional short bowel syndrome

After a long fertility journey and a high risk, stressful, and very sick pregnancy, Stephanie gave birth at 26 weeks due to severe preeclampsia. Stephanie, mom to Adeline, shares her experiences in the NICU and describes Addie's difficulty with digestion. A long road of unknowns eventually led to a diagnosis of functional short bowel syndrome. Stephanie shares her perspective about important topics like how having a child with an "invisible disease" can be a blessing and a curse, how she actuall...
10
April 30, 2018

Episode 22 | Belinda's Story - A son with low muscle tone, epilepsy and autism

Belinda, a mom, certified child life specialist, teacher and creator of ChildLifeConnection.com shares her story with us today on the final episode of season two of the Child Life On Call Podcast. As a cancer survivor herself, Belinda knew that she wanted her life's work to positively impact hospitalized children and thus she became a Child Life Specialist. After getting married and having her first child, she applied her knowledge of child development and expertise with children to her own son...
9
April 23, 2018

Episode 21 | Alex's Story - A daughter born with congenital heart defects and heterotaxy

At Alex's 20-week ultrasound appointment, she and her husband learned that their daughter, Lucy, had heterotaxy and congenital heart defects. From that moment, their lives changed and they became advocates and fighters for their spunky daughter who is now one year old. In this episode, Alex talks about Lucy's birth, surgeries, hospitalizations and ER visits. She talks about how their cardiologist became one of their biggest champions and what a difference the congenital heart defect online comm...