New Episodes Every Wednesday

Parent Advocacy Episodes

Understand the critical role of advocacy in pediatric healthcare as parents share their experiences navigating complex health systems and voicing their children's needs.
From Pharmacist to Mom: Navigating Type 1 Diabetes and Celiac Disease
May 26, 2026

From Pharmacist to Mom: Navigating Type 1 Diabetes and Celiac Disease

What happens when the healthcare professional becomes the parent sitting on the other side of the diagnosis? In this episode, Katie Taylor sits down with Melissa Apa—a clinical pharmacist, diabetes educator, and mom—to share ...

Listen to the Episode
Why Hospital Continuity and Staff Support Are Critical: Parents Speak Out
May 7, 2026

Why Hospital Continuity and Staff Support Are Critical: Parents Speak…

Supporting Families in Pediatric Healthcare: Insights from Parent Caregivers In this episode, we explore the experiences of parent caregivers navigating their child's complex health journeys, emphasizing the importance of adv...

Listen to the Episode
Trust, Grief, and Loving Your Child Through Big Identity Changes
March 3, 2026

Trust, Grief, and Loving Your Child Through Big Identity Changes

What happens when your child shares something that shifts the future you thought you understood? In this episode of Inside the Children's Hospital, Katie sits down with Kelly Kemp — certified child life specialist of more tha...

Listen to the Episode
Rare Lung Disease, Epilepsy and the Diagnostic Journey
Jan. 27, 2026

Rare Lung Disease, Epilepsy and the Diagnostic Journey

When your child survives one medical emergency only to face another, parenting becomes a constant act of advocacy and courage. Today's guest joins us to share her daughter's journey with rare and complex medical conditions, f...

Listen to the Episode
When Insurance Isn't Enough: A Parent's Type 1 Diabetes Story
Jan. 13, 2026

When Insurance Isn't Enough: A Parent's Type 1 Diabetes Story

When your child receives a new medical diagnosis, it can feel like the world shifts beneath your feet. Today's guest joins Katie Taylor to share her daughter's Type 1 Diabetes journey—from dismissing "textbook" symptoms to n...

Listen to the Episode
New Diagnosis: What to Do When Your Child Gets Diagnosed
Jan. 6, 2026

New Diagnosis: What to Do When Your Child Gets Diagnosed

When your child receives a new medical diagnosis, it can feel like the world shifts beneath your feet. Here's how to move forward with clarity, support and connection, hosted by Katie Taylor and the Inside the Children's Hosp...

Listen to the Episode
Autism, Advocacy and the Power of a Medical ID Bracelet
Nov. 18, 2025

Autism, Advocacy and the Power of a Medical ID Bracelet

Tara Cohen opens up about her son Will's autism diagnosis and how it transformed her family and career. From navigating meltdowns to discovering AAC as a communication lifeline, Tara shares her honest reflections on parenting...

Listen to the Episode
Brain Surgery for Drug-Resistant Epilepsy: Managing Infantile Spasms
Nov. 4, 2025

Brain Surgery for Drug-Resistant Epilepsy: Managing Infantile Spasms

Join us for an incredibly candid and informative conversation with Audrey Vernick, a passionate advocate and the Director of Patient and Family Advocacy for the Pediatric Epilepsy Surgery Alliance. Audrey shares the powerful ...

Listen to the Episode
NICU Stay, Down Syndrome, and Infant Loss: A Grief Journey
Oct. 14, 2025

NICU Stay, Down Syndrome, and Infant Loss: A Grief Journey

In this incredibly personal and moving episode, we sit down with Teejay and Jon, the authors of the gentle children's book Clemence , to share the full, raw story of their daughter, Nadiya. Their journey began with an unexpec...

Listen to the Episode
Choosing the Best Children's Hospital: Why Rankings Matter (with Ben Harder)
Oct. 6, 2025

Choosing the Best Children's Hospital: Why Rankings Matter (with Ben …

Is the "best" hospital just about technology and surgical success? Ben Harder, the journalist who oversees the methodology and data for the U.S. News Best Children's Hospitals Rankings (2025), joins Katie to break down what t...

Listen to the Episode
Crohn's Disease in Children: A Mother-Daughter Advocacy Journey
Aug. 5, 2025

Crohn's Disease in Children: A Mother-Daughter Advocacy Journey

In this moving and hope-filled episode, mother-daughter duo Quinn Wyatt and Kirby Larson share the deeply personal story behind their middle grade novel, Gut Reaction . Diagnosed with Crohn's disease as a teen after years of ...

Listen to the Episode
Infantile Spasms Diagnosis at 22 Months: Early Recognition and Advocacy [Encore]
July 29, 2025

Infantile Spasms Diagnosis at 22 Months: Early Recognition and Advoca…

"What started as a terrifying diagnosis became a mission to help other families feel seen, supported, and brave." – Kate, founder of Brave Bears Club In this reposted and newly updated episode, we revisit Kate's emotional and...

Listen to the Episode
A NICU Story: Healing, Advocacy, and Family-Centered Care [Encore]
July 15, 2025

A NICU Story: Healing, Advocacy, and Family-Centered Care [Encore]

"I was pumping in the NICU, feeling completely disconnected—and my husband looked at me and said, 'Can you invite her in?' That moment changed everything. A nurse handed me a swab, I gave my baby colostrum for the first time,...

Listen to the Episode
A Microtia Atresia Diagnosis: Hearing Aids, Surgery and a Journey of Hope  [REPOST] - Kim's Story(255)
May 20, 2025

A Microtia Atresia Diagnosis: Hearing Aids, Surgery and a Journey of …

"You make the best decision for yourself and your family—and you stick with it."- Kim Pena What happens when you're handed unexpected news at your child's birth—and there's no clear roadmap ahead? In this reposted episode, ed...

Listen to the Episode
Blended Tube Feeding for G-tube fed Kids & Adults: How a dietician empowers families through food - Hilarie's Story (254)
May 13, 2025

Blended Tube Feeding for G-tube fed Kids & Adults: How a dietician em…

What if blending real food could transform your child's tube feeding experience—and your entire family's daily routine? In this inspiring episode, registered dietitian and new mom Hilarie shares how her career in pediatric nu...

Listen to the Episode
Prader-Willi Syndrome, Motherhood & Finding Community Through Advocacy [REPOST] (253)- Jessica's Story
May 6, 2025

Prader-Willi Syndrome, Motherhood & Finding Community Through Advocac…

📢 This is a special repost of one of our most heartfelt and insightful episodes. Whether this is your first time hearing Jessica's story or a revisit, her perspective as a mom of a child with Prader-Willi Syndrome will stick ...

Listen to the Episode
Two Sisters with Cystic Fibrosis - Laura's Story (252)
April 29, 2025

Two Sisters with Cystic Fibrosis - Laura's Story (252)

What would you do if both of your children were diagnosed with a life-threatening genetic disease—and there was no support system in place for parents like you? In this inspiring episode, Katie interviews Laura Bonnell, a for...

Listen to the Episode
A Nurse Practitioner's Story of Grief, Strength & Advocacy [REPOST] (251)- Ashley's Story
April 22, 2025

A Nurse Practitioner's Story of Grief, Strength & Advocacy [REPOST] (…

📢 This is a special repost of one of our most impactful and heartfelt episodes. Whether you're hearing Ashley O'Neill's story for the first time or revisiting it, her journey continues to resonate deeply with NICU families, p...

Listen to the Episode
A Rare Diagnosis Journey: Collagenous Gastritis and IGG deficiency (250)- Alexis' Story
April 15, 2025

A Rare Diagnosis Journey: Collagenous Gastritis and IGG deficiency (2…

What if every milestone your child was supposed to reach came with countless curve balls? For Alexis Kaplan, motherhood quickly turned into a journey of advocacy, strength, and unwavering love as she navigated her daughter Ga...

Listen to the Episode
A Mother and a Physician: Navigating Her Daughter's NMOSD Diagnosis – Maggie's Story (244)
March 4, 2025

A Mother and a Physician: Navigating Her Daughter's NMOSD Diagnosis –…

"I thought my job was to save my daughter, but I realized my job was to show her how to live with strength and resilience." – Dr. Maggie Kang We extend our sincere gratitude to our sponsor for this episode, Gebauer PainEase®....

Listen to the Episode
PCHD19, Autism + Epilepsy Diagnosis: The Motivation Behind a Caregiver Community
Feb. 4, 2025

PCHD19, Autism + Epilepsy Diagnosis: The Motivation Behind a Caregive…

"I had to teach myself to advocate – no one should leave a hospital with more trauma than they came with."- Julie Walters We extend our sincere gratitude to our sponsor for this episode, Gebauer PainEase®. We are pleased to p...

Listen to the Episode
Pediatric Kidney Transplant and a Mission to Help Others (241)
Jan. 21, 2025

Pediatric Kidney Transplant and a Mission to Help Others (241)

"Our goal wasn't to build something huge overnight – it was to listen to families, fill the gaps, and take that first step." – Cheryl Whitty We extend our sincere gratitude to our sponsor for this episode, Gebauer PainEase®. ...

Listen to the Episode
A Child's Near Drowning Accident: Finding Hope with Advocacy Abby
Jan. 7, 2025

A Child's Near Drowning Accident: Finding Hope with Advocacy Abby

"Hope doesn't take away the darkness, but it shines some light in it."- Abby Zachritz We extend our sincere gratitude to our sponsor for this episode, Gebauer PainEase®. We are pleased to provide more information about this p...

Listen to the Episode
How Parents Can Collaborate in Rounds in the Hospital
Jan. 5, 2025

How Parents Can Collaborate in Rounds in the Hospital

Navigating Medical Rounds: Tips for Parents from a Child Life Specialist In this episode, Katie Taylor, a certified child life specialist, offers critical insights and tips for parents navigating medical rounds with their hos...

Listen to the Episode