Episodes

"It's been rough. It's like your heart is in two different places." Katie, Certified Child Life Specialist interviews Madeline, a mom from Utah that shares her son's experience with having a rare form of skeletal dysplasia and how her daughter has dealt with their journey. Madeline is host of The Rare Life podcast which was inspired by her son, Kimball after his arrival into the world. In this episode, Madeline walks us through what it's been like for her daughter. Madeline is a fierce, inspi...

Annie, Certified Child Life Specialist interviews Lindsey, mom to Memphis a son who suffered from Infant Botulism. Lindsey is an experienced mother of three when her son, Memphis, came into the world. She breastfed him like she had her others and when he started refusing to nurse and acting sleepy, she took him urgent care. After two urgent care visits had concluded that Memphis had a cold-virus, his symptoms continued and she took him to the ER where he was quickly diagnosed with Infant Botulis...

Katie, Certified Child Life Specialist interviews Dafne, The Chronic Illness Coach. Dafne is mom to three college-age kids and she and her husband live in Houston, Texas. In this episode, we talk about how her children all suffer from chronic illness: Juvenile Type 1 Diabetes, Juvenile Psoriatic Arthritis and Juvenile Ankylosing Spondylitis. She describes how: *Finding a medical team who includes you as the parent is important *Searching for a tribe of people who understand is worth the effort *...

Katie, Certified Child Life Specialist interviews Shay Shull from Mix & Match Mama. Shay is a cookbook author, lifestyle blogger, travel agency owner, wife and mama who loves making every day special for my family. Shay is mom to four kids and she and her husband live in McKinney, Texas. Today, we talk about her daughter Ashby and how their family copes with Klippel-Trenaunay syndrome (KTS). Ashby is one of her adopted children from China and has had over 22 surgeries since joining their family....

Katie, Certified Child Life Specialist welcomes back Shani (a.k.a. Child Life Mommy) to the podcast. Shani is a Certified Child Life Specialist who has a private practice in Northern California and you can learn more about her community-based program in a previous episode here. But, today Shani puts on her "mom hat" and talks about the journey of having a child with learning differences like #anxiety, #adhd, #dyslexia and #dysgraphia. She describes how: *She has had to learn to advocate to get h...

Katie, Certified Child Life Specialist interviews Amanda, mom to two micro preemie twins born at 23 weeks. Amanda and her husband met at Baylor University and had a normal pregnancy and delivery with their first son. Their second go at getting pregnant was not as easy and included fertility treatments, bed rest and an traumatic, emergent c-section at 23 weeks. She describes how: *Her faith was instrumental for getting through their experience *Detailed preparation from NICU team before hand help...

Katie, Certified Child Life Specialist interviews Effie Parks, mom to Ford who was born with a rare disease called CTNNB1. Effie is the host of the Once Upon a Gene podcast and in this episode she shares about her journey into parenthood and what it's like raising a child with special needs. She describes how: she learned to advocate for her son's needs self-care is non-negotiable she came to the realization that although parenting is different than she envisioned, her son has taught her more ...

Katie Taylor, Certified Child Life Specialist interviews Dana Burnett, Certified Child Life Specialist for the Bougier City, Louisiana school district. Dana talks about her child life journey up until this point and how she has transitioned to supporting K-8th grade students through 1:1 interventions. She focuses on serving students with chronic illness, children facing illness and loss, and children with parents who have an illness. Follow along with Dana on Instagram @takingchildlifetoschool...

Katie, Certified Child Life Specialist talks to Danielle, mom to Della a daughter with Eosinophilic Gastroenteritis. You may know Danielle formally as Danni Starr, the media personality, but she is also momma of two girls, one of which suffers from invisible, chronic illness. Danielle takes us through what the journey to a diagnosis was like (spoiler: it wasn't easy), how their entire family copes with the ups and downs and one surprising revelation: chronic illness isn't all bad. Listen to D...

Katie, Certified Child Life Specialist interviews Teresa, a mom of a teenage daughter with Spina Bifida. With no signs of abnormalities during her pregnancy, Teresa was shocked to learn that a fatty lump on her daughter's skin at the base of her spine would lead to a diagnosis of spina bifida occult with a tethered spinal cord. Teresa walks us through the shock of the diagnosis and the power that a one-on-one discussion with an empathetic doctor had on their ability to cope. Motivated by thei...

(This episode was developed in partnership with Aflac. I was compensated for this episode, but all opinions are entirely my own. #ad) In this episode, Katie Taylor, Certified Child Life Specialist talks about the importance of a community for caregivers. She interviews Nichole who shares what her son's experience with cancer has been like. Sara Stewart, Child Life Specialist at Lurie Children's Hospital discusses how she supports children and families during their cancer journey. Nichole refers ...

In another version of "Katie and Jamie's Top 5" these two friends and child life specialists try to lighten the mood by talking about our favorite things of 2020. We can all admit the year was...meh... so why not chat about some of the good parts. Jamie and Katie talk about fun things like their favorite lounge wear, shows to binge, holiday traditions and more game-changing revelations like favorite recipes (spoiler: wine). From Jamie's favorite flavor of NyQuil to "sympathy chores" she had as...

In this episode, Annie, Certified Child Life Specialist, talks to Eilieen. She is the amazing mom of a determined, fun loving, 4-year-old hero named Brady. Brady was diagnosed with Recessive Dystrophic Epidermolysis Bullosa (RDEB). While he inspires all who meets him, his favorite thing is just being a typical boy and being treated as such. After a move from Texas to Colorado to find the best care and environment for him, life shifted and their family became advocates in the RDEB community. Ei...

Katie talks to two Certified Child Life Specialists and military spouses, Savannah Self and Lisa McWhorter about ways to support military families. From long waits in military hospitals to helping children navigate the deployment of parents, child life specialists have an important role in helping families cope. A lack of consistency in providers due to moves across the country, and the world, is one of the biggest healthcare challenges military families face. Savannah and Lisa share tips and ...

Meg, is mom to four children one of whom is living with syndromic craniosynostosis. Her daughter, Avery, who is now six-years-old is proof that children are resilient and capable of so much. She discusses the exhaustion that comes from being the caregiver for a child who requires around the clock care. Meg attributes family (20+ cousins!) constantly surrounding her with love to be one of the biggest parts of their coping. "The first year is so tough, so buckle up. But once it's over, you'll be...

0000006D 0000006D 000032F8 00002EBB 00343E2F 0000CADB 00007EF8 00007E87 00343DFB 003438E0

Katie, Certified Child Life Specialist, talks with Jamie Gentille, Director of Child Life Services at Inova Children's Hospital and Dr. Jody Thomas, from the Meg Foundation for Pain, in this episode. Dr. Jody Thomas is a licensed clinical psychologist, and specialist in pediatric medical illness and trauma and the founder of the Meg Foundation for Pain. She discusses the mission of their organization which addresses pain in children head-on. Listeners today will walk away with a better understa...

Spit up, and even reflux, can be a common problem for infants, but what happens when it's more than that? In this episode, Amrita shares with Katie, Certified Child Life Specialist, about what happens when a child's reflux became severe and leads to a three-week hospitalization, a feeding tube, and ongoing support from developmental therapists. This is the reality of severe gastroesophogeal reflux disease. Listen to Amrita's story to hear how she has coped with this experience and how her son ...

In this episode, Katie interviews Lisa, mom to Riley. Sweet Riley is a spunky and sweet two-year-old living with Sickle Cell Anemia. Lisa talks about how they knew it would be a possibility while she was pregnant due to the trait being passed down, but they had hoped and prayed to avoid it like they did with their first born, a son who is now nine years old. She says that she can handle the frequent trips to the ER, but watching her daughter in pain is a feeling no mother should have to experi...

Meet Ashlyn, momma to her sweet and smiley boy, Myles. Myles was born with a rare disease that effects his limbs and other parts of his body. These symptoms are known as VACTERL association. As a self-proclaimed "planner," Ashlyn talks about the difficulties of having so many unknowns during her pregnancy and how she coped... and is coping... with their journey. She attributes her strong partnership with her husband and prayer as key components to getting through difficult times. If you'd like...

Meet Maura Senneff, mom to sweet Ryan. Ryan is a thriving 8-year-old boy who has Down syndrome. The amazing advocate by his side, his momma Maura, describes that "zooming out" and looking at things from wide lens helped them turn Ryan's health around. She talks about small changes and the "no limits" attitude their family lives by. If you'd like to follow along with Maura Senneff and her son, Ryan, you can follow their Instagram @Maurasenneff. Guest: Maura Senneff, Released: Aug 12, 2020 Whe...

Katie talks to Dominique, mom to Mila, who shares her birth story and NICU experience. Born at just 1lb 11ounces at 26 weeks old, Mila has made tremendous progress thanks to proactive parents, therapies and her momma's un conditional love. Dominique talks about the fear that comes with being an African American pregnant woman in the healthcare setting as well as the impact that sharing her story and community has had on her ability to cope with their journey. You can follow Dominique Pompey th...

Katie interviews Meg and Jess, two certified child life specialists who also have dual certifications in rec therapy and nursing! These two ladies host a podcast called Don't Worry Bout My Hair and they are your @friendswithfros! We tackle tough questions that are way overdue in the field of child life: Have you received any feedback or comments from black families regarding challenges due to limited diversity of the hospital staff? What's been the most challenging thing about being a black wom...

In this episode, Katie, Certified Child Life Specialist, interviews Jessica, mom to two special needs children and one of which who is on the Autism spectrum. Jessica is also an adult clinical neuropsychologist and also hosts a podcast with her husband called, Thriving in the Midst of Chaos. Jessica discusses their journey to get a diagnosis, how they are coping with virtual therapy during covid19, and provides great resources and information about the Autism community. If you'd like to share ...