New Episodes Every Wednesday

Episodes

Episode 6 | Tricia's Story - A daughter diagnosed with Rolandic Epilepsy
6
Aug. 7, 2017

Episode 6 | Tricia's Story - A daughter diagnosed with Rolandic Epilepsy

Episode 6 features Tricia, a mama who lives in the southwest suburbs of Chicago. Tricia bring a unique perspective and understanding of child development in her experience based on the fact that she has her masters in early childhood development and education, is currently an adjunct faculty member at Depaul University and is also a doula.In this episode, you'll hear Tricia talk about the fight of a lifetime to find a diagnosis for her daughter, Cora, who is now 13 years old. After four and a h...
Episode 5 | Karen's Story - A nicu stay after undected gestational diabetes
5
July 31, 2017

Episode 5 | Karen's Story - A nicu stay after undected gestational diabetes

Karen had a typical pregnancy up until the last few scary days when she was unable to feel her daughter move. After following her mother instinct, Karen went to the hospital and quickly learned she would need an emergent c-section. As emergencies go, everything was unexpected.In this episode, Karen walks us through what her daughter's birth and subsequent NICU stay was like. She talks about the unknown's of her daughter's health as well as how difficult it was to be away from her in those first...
Episode 4 | Abigail's story - a son diagnosed with Spina Bifida and Hearing Loss
4
July 17, 2017

Episode 4 | Abigail's story - a son diagnosed with Spina Bifida and Hearing Loss

After arriving at her 20 week ultrasound, Abigail, her husband and mother were anxiously awaiting to hear the news of their first child's gender. However, the appointment took a turn when they learned that their son would be born with Spina Bifida. Abigail talks to us about that experience and their journey since that life changing moment. They'd come to learn that their son also had hearing loss and she talks about the challenges associated with it.Abigail expresses her feelings about Teak's ...
Episode 3 | Kim's Story - A son born with Microtia Atresia and hearing loss
3
July 10, 2017

Episode 3 | Kim's Story - A son born with Microtia Atresia and hearing loss

In this episode you will hear Kim talk about her experience in finding out that her son had Microtia Atresia, the interesting link to their family history and how that has affected her journey, and the tough decision about how and when to move forward with surgery.Microtia is a congenital deformity where the external ear is underdeveloped, and Atresia is the absence or closure of the external auditory ear canal. The malformation of the middle ear bones may be affected including the narrowing of...
Meningoencephalitis Leads to a Coma in the PICU
July 3, 2017

Meningoencephalitis Leads to a Coma in the PICU

Michelle's story is one that took place over 15 years ago, and this is the first time she has spoken about it publicly. At the age of two, Brynn started developing inexplicable fevers which concerned her mother, an Emergency Room nurse. After trusting her gut that "something was wrong," Michelle brought her daughter in the middle of the night to the ER and shortly after was diagnosed with meningoencephalitis and in a coma for over a week.Michelle brings a unique perspective on relationships wi...
Goldenhar Syndrome and Caudal Regression: Living with Multiple Diagnoses
June 26, 2017

Goldenhar Syndrome and Caudal Regression: Living with Multiple Diagnoses

After a long pregnancy on hospitalized bedrest, Kelli describes the birth and first year of her twin girls, one of which was born with two genetic conditions, Caudal Regression Syndrome and Goldenhar Syndrome. The journey to diagnose these conditions was a long one, and Kelli talks about what that process was like, and what is like to have a child with these two syndromes.Kelli recommends a several resources, www.isacra.com and the Goldenhar Syndrome Facebook group.Kelli also recommends raredi...
Child Life On Call
May 11, 2017

Child Life On Call

This is the first promotional episode for the Child Life On Call Podcast. If you would like to share your story, email us at childlifeoncall@gmail.com, visit our website at www.childlifepodcast.com, or find us on Instagram @childlifeoncall.The first official podcast episode will launch in June 2017. Subscribe to be updated on our most recent episodes.