New Episodes Every Wednesday

Parent Advocacy Episodes

Understand the critical role of advocacy in pediatric healthcare as parents share their experiences navigating complex health systems and voicing their children's needs.
Episode 160 | Jodi's Story - HELLP Syndrome and a Premature Birth
March 15, 2023

Episode 160 | Jodi's Story - HELLP Syndrome and a Premature Birth

Katie has a co-host, Serheen Noor Ali from Hello Sleuth on today's episode where we hear Jodi's story of developing HELLP Syndrome and having a premature birth. Jodi walks us through her birth story along with those first mom...

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Episode 150 | Grandparents Guide to Supporting Their Kids + Grandkids during Illness
Jan. 3, 2023

Episode 150 | Grandparents Guide to Supporting Their Kids + Grandkids…

On today's episode, Katie shares with our listeners how Grandparents can support their kids and grandkids during an illness or diagnosis. During the holidays with lots of family time, this topic came to mind. Grandparents are...

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Episode 144 | Alex's Story - A NICU Dad Perspective
Nov. 1, 2022

Episode 144 | Alex's Story - A NICU Dad Perspective

As a NICU Dad, Alex Zavala share his perspective and critical role as a father on today's episode of the podcast. Alex shares so many moments along his journey that impacted him and gives advice to fellow NICU dads out there....

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Episode 137 |Lauren's Story - A son with Aicardi-Goutieres Syndrome (AGS)
Sept. 13, 2022

Episode 137 |Lauren's Story - A son with Aicardi-Goutieres Syndrome (…

On today's episode of the podcast we hear from Lauren about her son's diagnosis of Aicardi-Goutieres Syndrome (AGS.) She shares how her uneventful pregnancy followed by a NICU stay and numerous hospital visits with unanswered...

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Episode 112 | Sehreen's Story: A Daughter Requires Neurosurgery
March 22, 2022

Episode 112 | Sehreen's Story: A Daughter Requires Neurosurgery

March is Child Life month, and I wanted to feature some amazing organizations that are doing so much to support children and families in crisis. A few weeks back, I had the opportunity to interview an expert in the field of C...

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Paige's Story: A Daughter with Nursemaid's Elbow
March 15, 2022

Paige's Story: A Daughter with Nursemaid's Elbow

March is Child Life month, and I wanted to feature some amazing organizations that are doing so much to support children and families in crisis. A few weeks back, I had the opportunity to interview an expert in the field of C...

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Episode 94 | Moira's Story: Kids with Celiac Disease and Migraines
Nov. 9, 2021

Episode 94 | Moira's Story: Kids with Celiac Disease and Migraines

Today I get to introduce you to Moira, the host of Surviving the Waiting Room - a podcast based on her experiences from learning how to be an advocate for her teenage children as they started to figure out their health issues...

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Episode 92 | The Dad's Perspective: A Son with a Rare Genetic Disease
Oct. 26, 2021

Episode 92 | The Dad's Perspective: A Son with a Rare Genetic Disease

The Dad's Perspective: A Son with a Rare Genetic Disease So there is this rock star in the podcast world, and her name is Effie Parks. She hosts a podcast called Once Upon a Gene, inspired by her son who has a rare genetic d...

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Episode 89 | How to Talk with Kids About Disabilities with Dr. Brittany Ferri
Oct. 5, 2021

Episode 89 | How to Talk with Kids About Disabilities with Dr. Britta…

For today's 12 minute talk, I'm interviewing Dr. Brittany Ferri. She is an occupational therapist, and she has a passion for talking with kids about disabilities. Brittany talks about her program, Social Fly, a social and m...

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Sickle Cell Anemia in Children: A Mother's Advocacy Journey
Sept. 14, 2021

Sickle Cell Anemia in Children: A Mother's Advocacy Journey

It's another day in September, which means we are going to be recognizing National Sickle Cell Awareness Month. Sickle Cell Disease is an inherited blood disorder in which blood cells may become sickle shaped and harden, cau...

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Childhood Cancer: Support and Wisdom from Parents Who've Been There
Sept. 7, 2021

Childhood Cancer: Support and Wisdom from Parents Who've Been There

September is Childhood Cancer Awareness Month. Over the last four-and-a-half years, I have had the opportunity and honor to interview many parents who are a part of a club that they didn't ask to be in. There is a common bo...

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Episode 62 | Madeline's Story - The sibling of a child with a rare genetic condition
March 23, 2021

Episode 62 | Madeline's Story - The sibling of a child with a rare ge…

"It's been rough. It's like your heart is in two different places." Katie, Certified Child Life Specialist interviews Madeline, a mom from Utah that shares her son's experience with having a rare form of skeletal dysplasia an...

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Klippel-Trenaunay Syndrome (KTS): One Family's Rare Disease Journey
Feb. 23, 2021

Klippel-Trenaunay Syndrome (KTS): One Family's Rare Disease Journey

Katie, Certified Child Life Specialist interviews Shay Shull from Mix & Match Mama. Shay is a cookbook author, lifestyle blogger, travel agency owner, wife and mama who loves making every day special for my family. Shay is mo...

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Episode 57 | A NICU stay for micro preemie twins born at 23 weeks
Feb. 2, 2021

Episode 57 | A NICU stay for micro preemie twins born at 23 weeks

Katie, Certified Child Life Specialist interviews Amanda, mom to two micro preemie twins born at 23 weeks. Amanda and her husband met at Baylor University and had a normal pregnancy and delivery with their first son. Their se...

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Episode 55 | Dana's Story - Child Life Speialists in Schools - 12:14:20, 8.23 PM
Jan. 19, 2021

Episode 55 | Dana's Story - Child Life Speialists in Schools - 12:14:…

Katie Taylor, Certified Child Life Specialist interviews Dana Burnett, Certified Child Life Specialist for the Bougier City, Louisiana school district. Dana talks about her child life journey up until this point and how she h...

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Episode 49 | Supporting families facing childhood medical experiences in the miltary
Nov. 3, 2020

Episode 49 | Supporting families facing childhood medical experiences…

Katie talks to two Certified Child Life Specialists and military spouses, Savannah Self and Lisa McWhorter about ways to support military families. From long waits in military hospitals to helping children navigate the deploy...

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Sickle Cell Anemia in Children: A Mother's Advocacy Journey
Sept. 15, 2020

Sickle Cell Anemia in Children: A Mother's Advocacy Journey

In this episode, Katie interviews Lisa, mom to Riley. Sweet Riley is a spunky and sweet two-year-old living with Sickle Cell Anemia. Lisa talks about how they knew it would be a possibility while she was pregnant due to the t...

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VACTERL Association: What Parents Need to Know About This Rare Diagnosis
Aug. 18, 2020

VACTERL Association: What Parents Need to Know About This Rare Diagno…

Meet Ashlyn, momma to her sweet and smiley boy, Myles. Myles was born with a rare disease that effects his limbs and other parts of his body. These symptoms are known as VACTERL association . As a self-proclaimed "planner," A...

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Down Syndrome: A Mother's Journey of Love and Advocacy
Aug. 11, 2020

Down Syndrome: A Mother's Journey of Love and Advocacy

Meet Maura Senneff, mom to sweet Ryan. Ryan is a thriving 8-year-old boy who has Down syndrome. The amazing advocate by his side, his momma Maura, describes that "zooming out" and looking at things from wide lens helped them ...

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Anti-Racism and Diversity in Child Life: An Important Conversation
June 9, 2020

Anti-Racism and Diversity in Child Life: An Important Conversation

Katie interviews Meg and Jess, two certified child life specialists who also have dual certifications in rec therapy and nursing! These two ladies host a podcast called Don't Worry Bout My Hair and they are your @friendswithf...

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Autism Diagnosis: A Mother's Journey from Anxiety to Acceptance
May 25, 2020

Autism Diagnosis: A Mother's Journey from Anxiety to Acceptance

In this episode, Katie, Certified Child Life Specialist, interviews Jessica, mom to two special needs children and one of which who is on the Autism spectrum. Jessica is also an adult clinical neuropsychologist and also hosts...

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When Your Child is Diagnosed with Leukemia: What to Expect
April 26, 2020

When Your Child is Diagnosed with Leukemia: What to Expect

Elizabeth, mom to three girls, shares with us her experience of having a daughter with cancer. In just an hour and a half, her 9-year-old daughter went from a pediatricians office to a cancer ward. Elizabeth discusses her Eli...

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