New Episodes Every Wednesday

Parent Advocacy Episodes

Understand the critical role of advocacy in pediatric healthcare as parents share their experiences navigating complex health systems and voicing their children's needs.
230: Navigating Childhood Cancer: Supporting families through her own experience - Heather's Story
Sept. 24, 2024

230: Navigating Childhood Cancer: Supporting families through her own…

230: Navigating Childhood Cancer: Supporting families through her own experience - Heather's Story "We've joined a club that nobody wants to be a part of, but the good part is we have the best members." A huge thank you to ou...

Listen to the Episode
229: Trusting your parental Instincts when addressing your child's chronic pain- A son with Juvenile Arthritis- Kim's Story
Sept. 17, 2024

229: Trusting your parental Instincts when addressing your child's ch…

"Trust your gut. If your parent radar comes up and says this is not right, keep pushing." – Kim In this episode, Katie Taylor speaks with Kim Miller, a mother whose journey navigating her son Grant's diagnoses of juvenile art...

Listen to the Episode
228: Early Diagnosis, Advocacy and Equity: A daughter with Cystic Fibrosis- Nikki's Story
Sept. 3, 2024

228: Early Diagnosis, Advocacy and Equity: A daughter with Cystic Fib…

"We are the experts on our daughter and we deserve a say, and we deserve to be given the time to ask questions." – Nikki DeLeo We extend our sincere gratitude to our sponsor for this episode, Gebauer PainEase®. We are pleased...

Listen to the Episode
227: Searching for a Diagnosis: A Rare Disease Mom and Advocate's Journey - ADCY5 Gay's Story
Aug. 20, 2024

227: Searching for a Diagnosis: A Rare Disease Mom and Advocate's Jou…

"If you have a doubt about something with your child or a family member, it's just really important to keep pushing through and get to the answers." – Gay Grossman In this episode, host Katie Taylor speaks with Gay Grossman, ...

Listen to the Episode
221:Collaborative care between a Child Life Specialist and Social Worker with Annie Gunning and Haley Thomas at Hope for HIE
June 11, 2024

221:Collaborative care between a Child Life Specialist and Social Wor…

On today's episode, Katie had the privilege of speaking with Annie Gunning , a Certified Child Life Specialist and Grief Counselor, and Haley Thomas , a Licensed Master Social Worker, on their collaborative efforts to support...

Listen to the Episode
218: How NOT to Give Families Medical Information - A son with CHARGE syndrome, Taylor's Story
May 14, 2024

218: How NOT to Give Families Medical Information - A son with CHARGE…

Today's guest is Taylor Happley, a mom of a child with CHARGE syndrome. "We need to figure out why and how to help these kids get the medical attention that they need." In today's episode, Katie Taylor had an important conver...

Listen to the Episode
214: Sacrifice, Advocacy, Joy: Raising a Son with End Stage Kidney Disease - The Ransome Family's Story
April 9, 2024

214: Sacrifice, Advocacy, Joy: Raising a Son with End Stage Kidney Di…

"Sometimes it's really therapeutic though to remember all that you have gone through because I feel like there are times when we look at each other and I'm like how did we get here?" -Tayler Ransome We're grateful for our spo...

Listen to the Episode
211: A Son Born with End-Stage Kidney Disease (Part 1): Lyndsey's Story
March 19, 2024

211: A Son Born with End-Stage Kidney Disease (Part 1): Lyndsey's Sto…

"Having a medically complex child, it's like everything's fine. And then, you know, we have a morning where we've thrown up a lot or our blood pressure is too low, and it just doesn't look good. You just never know what you'r...

Listen to the Episode
210: Connection, Healing, and Love: Insights from Patrice Karst, Author of The Invisible String
March 13, 2024

210: Connection, Healing, and Love: Insights from Patrice Karst, Auth…

"Love is the most powerful force in the universe, and the invisible string is a testament to the connections that bind us all." - Patrice Karst In this special Child Life Month episode, Katie Taylor sits down with Patrice Kar...

Listen to the Episode
208: Military Life, Pediatric Complex Care Abroad & Resiliency: Kat's Story
Feb. 27, 2024

208: Military Life, Pediatric Complex Care Abroad & Resiliency: Kat's…

In this profound episode, we join Katie Taylor as she delves into the inspiring journey of a military family navigating pediatric healthcare for their two medically complex children. Through the voice of the remarkable mother...

Listen to the Episode
205: How to Support Kids who are Grieving, Bittersweet Relationships & Personal Loss
Feb. 6, 2024

205: How to Support Kids who are Grieving, Bittersweet Relationships …

In this episode, we're honored to have Jessica Correnti, a certified child life specialist and a bereaved mother, share her profound insights on grief. Jessica's dual perspective offers a rich understanding of the multifacete...

Listen to the Episode
204: Caregiver Isolation, Transitioning to Adult Special Needs, and Becoming CapeAble - Marna's Story
Jan. 30, 2024

204: Caregiver Isolation, Transitioning to Adult Special Needs, and B…

"Millie's journey has taken me to the end of myself, but it's been the most beautiful beginning of understanding humanness and how to be compassionate and how to really be kind to other people and take notice that the story t...

Listen to the Episode
Episode 198 | Jennifer's Story- A son with necrotizing enterocolitis (NEC)
Dec. 5, 2023

Episode 198 | Jennifer's Story- A son with necrotizing enterocolitis …

In this episode of Child Life On Call, we are honored to host Jennifer Canvasser, the driving force behind the NEC Society, as she shares her poignant journey and advocacy for Necrotizing Enterocolitis (NEC) awareness in the ...

Listen to the Episode
Episode 188 | Rhandyl and Deonna's stories from Raising Disabled
Sept. 19, 2023

Episode 188 | Rhandyl and Deonna's stories from Raising Disabled

My special guest is Rhandyl Vinyard, Deonna Wade Rhandyl Vinyard and Deonna Wade are two phenomenal mothers from Texas, each raising disabled children. Drawn together by shared circumstances, their friendship continues to str...

Listen to the Episode
Episode 187 | Kayleigh's Story-A Child Life Specialist's son with Tetralogy of Fallot [part 2]
Sept. 12, 2023

Episode 187 | Kayleigh's Story-A Child Life Specialist's son with Tet…

Do you want to become a confident advocate for your child's medical needs? Are you searching for a solution to navigate the complex world of medical care for children with conditions? Join us as we welcome Kayleigh Koehler, a...

Listen to the Episode
Episode 186 | Kayleigh's Story - A Child Life Specialists son with Tetralogy of Fallot [part 1]
Sept. 5, 2023

Episode 186 | Kayleigh's Story - A Child Life Specialists son with Te…

Welcome to the ChildLife On Call podcast, where I, Katie Taylor, sit down with Kayleigh Koehler, a certified child life specialist, to discuss her journey as a medical mom and a child life specialist in a cardiac ICU. Join us...

Listen to the Episode
Episode 181 | Jan' s Story- A daughter with PVOD and a Lung Transplant
Aug. 1, 2023

Episode 181 | Jan' s Story- A daughter with PVOD and a Lung Transplant

A mother fights against time and navigates the emotional rollercoaster of her daughter's lung transplant, as she strives to fulfill her promise while facing the heart-wrenching challenges of the organ transplant process in a ...

Listen to the Episode
Episode 177 | Kimberly's Story - Cord Prolapse and Emergent C-Section at 26 Weeks
July 4, 2023

Episode 177 | Kimberly's Story - Cord Prolapse and Emergent C-Section…

Empowering NICU Parents: Kimberly Reyes Shares Her Advocacy Journey If you're feeling helpless and overwhelmed in your NICU journey, despite trying to be involved and advocate for your baby, then you are not alone! It can be ...

Listen to the Episode
[Child Life 101] Empowering Parents: How Child Life Specialists Teach Effective Advocacy
July 2, 2023

[Child Life 101] Empowering Parents: How Child Life Specialists Teach…

Do you want to feel empowered and confident in advocating for your child's healthcare needs? Are you searching for a solution that will help you effectively speak up for your child in healthcare settings? In this episode, I w...

Listen to the Episode
Episode 174 | Finding out your Child has Cancer During your Pediatric Residency with Dr. Maureen Michele
June 13, 2023

Episode 174 | Finding out your Child has Cancer During your Pediatric…

Dr. Maureen Michele brings such a valuable perspective to the podcast with her experience being a pediatrician and mother to a medically complex child. Maureen shares with us how to become an advocate and what inspired her to...

Listen to the Episode
Episode 169 | Dr. Kelly Fradin - Building Trusted Relationships with your child's Pediatrician
May 9, 2023

Episode 169 | Dr. Kelly Fradin - Building Trusted Relationships with …

On this week's episode, Katie and Co-Host Serheen Noor Ali from Hello Sleuth interview Dr. Kelly Fradin about building trusted relationships with your child's pediatrician. Dr. Fradin shines a light on parent and patient exp...

Listen to the Episode
Episode 163 | Emma's Story - A daughter with Trisomy 18
April 4, 2023

Episode 163 | Emma's Story - A daughter with Trisomy 18

Katie interviews Emma Springer, mother to Sage who was born with Trisomy 18. Emma shares her journey to parenthood and how they learned of Sage's diagnosis. Prior to Sage being born, Emma was a pediatric nurse. Emma shares th...

Listen to the Episode
Episode 162 | Kayla's Story - A daughter with Ollier's Disease
March 28, 2023

Episode 162 | Kayla's Story - A daughter with Ollier's Disease

On todays episode of the podcast, Katie along with co-host Mijha Godfrey from Jambo Books , interview Kayla Gunderson, who's daughter was diagnosed with Ollier's disease. You will get to hear how Kayla navigated her daughter'...

Listen to the Episode
Episode 161 | Dana's Story - Micropreemie Twins Born at Home
March 21, 2023

Episode 161 | Dana's Story - Micropreemie Twins Born at Home

Katie along with Co-host Cortney Given, host of the podcast Mindset for Medical Moms , interviews Dana who had micro-preemie twins at home. She bravely shares her story and how she and her husband acted quickly with the unexp...

Listen to the Episode