Caregiver Stories Episodes

The Dad's Perspective: A Son with a Rare Genetic Disease So there is this rock star in the podcast world, and her name is Effie Parks. She hosts a podcast called Once Upon a Gene, inspired by her son who has a rare genetic d...

Today I'm introducing you to Jenny Hull, a single mom to Josie who just turned 20 years old. Jenny is also the CEO and founder of a nonprofit organization called Once Upon a Room. They are changing the game for kids in hosp...

It's an incredibly rare experience to sit next to someone else who "gets" what you're going through… exactly. That's what support groups are for, right? Well, today you're getting an inside look into what young adults who hav...

I connected with one of today's guests, Brady, through our shared alma mater, Penn State University. He has dealt with cancer not once, but twice, and he agreed to come on the podcast with his mother, Lisa. I'm so honored t...

I'm so excited to have my friend Starlyn on the show today! She and her husband have struggled with infertility for years, and she is here to share the miraculous story about having one embryo and ending up with four babies....

September is Childhood Cancer Awareness Month. Over the last four-and-a-half years, I have had the opportunity and honor to interview many parents who are a part of a club that they didn't ask to be in. There is a common bo...

My guest this week is Taraneh, sharing her story about having a son with cleft palate. In this episode, we talk about… [2:24] Taraneh's background and her family [3:54] Taraneh's pregnancy and birth experience with her son [5...

This episode is sponsored by SmileMakers. Use code ONCALL20 for 20% off your order of smile making stickers, toys, patient supplies, and more! Meet Bonnie, her husband and her three adult children. Bonnie calls herself "the r...

"For me, it's balancing supporting him in full honor of his disabilities and making sure I am advocating for him AND relating to him as fully capable and strong." Katie, Certified Child Life Specialist talks with mom of four,...

Katie, Certified Child Life Specialist talks with Cortney Given, Life Coach and Host of the Mindset for Medical Moms Podcast . Cortney could have never guessed that the high school paper she wrote HLHS would be given to her s...

"It was a life or death... that was our life and we rose to the occasion." Katie, Certified Child Life Specialist talks with Laurie Strongin from Hope for Henry. We talk about: +How parenthood started out with hearing the new...

Katie, Certified Child Life Specialist talks with Sara Olsher, mom, cancer survivor, and owner of Mighty and Bright. Not only does Sara talk with us about getting diagnosed with breast cancer at the age of 34, but she also ta...

Episode 69 | Liza's Story - A daugther with Lyme Disease "I don't think I would have ever done the work on myself had it not been for my daughter's struggle." Katie, Certified Child Life Specialist talks with Liza Blas from V...

"We had to learn everything we could because our son's life was literally on the line." Katie, Certified Child Life Specialist talks with Todd and Morgan who just a few weeks after the birth of their first child were faced wi...

"I think this may be a parent's worst nightmare." Katie, Certified Child Life Specialist interviews Holly, mom to three children living in Northern California. Holly's son, Austin, was typical until just after his 1st birthda...

Mijha and her husband live in Atlanta with their three daughters—ages 9, 5, and 8 months at the time of this conversation with Child Life On Call. Her middle daughter, Violet, was born with challenges that became evident only...

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"It's been rough. It's like your heart is in two different places." Katie, Certified Child Life Specialist interviews Madeline, a mom from Utah that shares her son's experience with having a rare form of skeletal dysplasia an...

Annie, Certified Child Life Specialist interviews Lindsey, mom to Memphis a son who suffered from Infant Botulism. Lindsey is an experienced mother of three when her son, Memphis, came into the world. She breastfed him like s...

Katie, Certified Child Life Specialist interviews Dafne, The Chronic Illness Coach. Dafne is mom to three college-age kids and she and her husband live in Houston, Texas. In this episode, we talk about how her children all su...

Katie, Certified Child Life Specialist interviews Shay Shull from Mix & Match Mama. Shay is a cookbook author, lifestyle blogger, travel agency owner, wife and mama who loves making every day special for my family. Shay is mo...

Katie, Certified Child Life Specialist welcomes back Shani (a.k.a. Child Life Mommy ) to the podcast. Shani is a Certified Child Life Specialist who has a private practice in Northern California and you can learn more about ...

Katie, Certified Child Life Specialist interviews Amanda, mom to two micro preemie twins born at 23 weeks. Amanda and her husband met at Baylor University and had a normal pregnancy and delivery with their first son. Their se...

Katie, Certified Child Life Specialist interviews Effie Parks, mom to Ford who was born with a rare disease called CTNNB1. Effie is the host of the Once Upon a Gene podcast and in this episode she shares about her journey int...