Caregiver Stories Episodes

Katie has a co-host, Serheen Noor Ali from Hello Sleuth on today's episode where we hear Jodi's story of developing HELLP Syndrome and having a premature birth. Jodi walks us through her birth story along with those first mom...

On today's episode of the podcast, Katie interviews Ryan who's son has Becker's Muscular Dystrophy. Ryan tells the story of the road to diagnosis for his son Jack and how their family coped along the way. Hear about what fuel...

On this week's episode of the podcast, Katie interviews Michele Benyo, a Certified Grief Specialist who helps families navigate the loss of a child with a focus on sibling relationships. Michele experienced the loss of her 6 ...

Travis shares how they discovered his daughter's cystic fibrosis diagnosis at age 4. Just months earlier, Travis learned his half sister was diagnosed with Cystic Fibrosis. He shares how the journey impacted his life on a pr...

On this episode, Savannah shares what it means to have wreck-less hope. Through her traumatic birth, having micro preemie twins and receiving a cerebral palsy diagnosis for one of the twins, Savanah explains how her twins hav...

This episode is full of tangible truth about what it means to be a caregiver and advocate. Kelly shares about her daughter's epilepsy diagnosis and how it changed her entire world. After a normal pregnancy and delivery, Adela...

Cindy and Gavin share about their son Ryan and his battle with Osteosarcoma. Cindy shares about how she created a Case for Smiles to help her cope with Ryan's diagnosis. Gavin brings the perspective of dad and professional an...

On today's episode, Katie shares with our listeners how Grandparents can support their kids and grandkids during an illness or diagnosis. During the holidays with lots of family time, this topic came to mind. Grandparents are...

On this week's episode, Katie wraps up the year with, Lyndsey (CLOC admin + podcast editor) sharing about what the common themes across the episodes were in 2022. This year was a memorable one as there were so many parents w...

Katy shares about her daughter Charlotte and how her surgeries that left scars inspired her to write a book about seeing scars in a positive way. Finding out about her daughter's diagnosis at 32 weeks on a Thursday morning an...

Caryn shares about her daughter Elaina developing ALCAPA, a congenital heart defect, and how they found out weeks after an uneventful pregnancy. Caryn will shed light on how she coped with Elaina's diagnosis and how she stro...

On today's episode of the podcast, Ashley + Martha from Dear NICU Mama share their personal stories of trials and joy as they navigated difficult seasons as NICU moms themselves. You will feel right at home with the wit and c...

As a NICU Dad, Alex Zavala share his perspective and critical role as a father on today's episode of the podcast. Alex shares so many moments along his journey that impacted him and gives advice to fellow NICU dads out there....

On today's episode of the podcast, Emily Lemke shares how to stay organized as a medical parent. Emily's expertise comes from being a medical parent herself and a clinical social worker. She shares about her own journey navig...

Swapnil, father of two, shares on this episode of the podcast about his daughter, Anya, who has severe food allergies. Swapnil shares about Anya's first symptoms of a food allergy and the event that revealed the severity of ...

Hannah bravely shares how her two young daughters developed febrile seizures. Although febrile seizures are common, it is something that isn't talked about enough. Hannah will shed some light for families walking through this...

" It was like I was leaving home with a newborn because I had no idea what to do. We were in survival mode for those 3 days in the hospital. It was just nothing that I ever expected to be dealing with.'-Melanie Smith Melanie ...

"A patient becomes so vulnerable with them because they don't even realize what they are doing. When you are in that moment petting the dog, every emotion, feeling and thought runs free because you aren't having to focus on a...

On todays episode, we will hear from Rita Ho-Bezzola, CEO and Founder of Piper + Enza: A Covid-19 inspired health and happiness company for kids. Rita shares her inspiration behind Piper + Enza and how her goal is to make com...

On today's episode of the podcast we hear from Lauren about her son's diagnosis of Aicardi-Goutieres Syndrome (AGS.) She shares how her uneventful pregnancy followed by a NICU stay and numerous hospital visits with unanswered...

"It's not a time to say I'm sorry, It's a time to acknowledge that, yes in fact you had something you did not plan for, a traumatic event. But also you did have a baby and to step into that joy and gratitude and not lose sigh...

Judith shares how one of her twins was born with albinisim and how she stayed positive during the diagnosis and beyond. This episode will absolutely touch your heart, Judith is a natural story teller and captures hows she emb...

"I've connected with food allergy patients and we have all come together. That is the most important thing, to make sure that nobody feels alone."-Rebekah Wallace Rebekah shares her life today as a teen with food allergies. T...

Tanisha tells a story of strength and perseverance as her son Jaleel was born with a lower urinary tract obstruction. T his story highlights the powerful ways Tanisha and her husband, Quentin work together as a team for Jalee...