Caregiver Stories Episodes

Paola shares the shocking diagnosis her son received as a newborn of ADA-SCID (Severe Combined Immunodeficiency.) This powerful story a he shares how she navigated hospital life during the beginning of the pandemic and her jo...

"Never listen when they tell you your child will not, encourage them to do the best they can do"- Belinda Hammond, CCLS Belinda shares her son's journey with low tone, epilepsy and autism and how her professional and personal...

On this episode of the podcast, you will hear an amazing story of resilience and hope.This episode originally aired back in August of 2020. This is the most shared of all of our podcast episodes; you will quickly learn why af...

Episode 127 | Courtney's Story - A daughter born at 25 weeks [MOST DOWNLOADED] At just 25 weeks pregnant, Courtney was diagnosed with pre-eclampsia and was hospitalized. Just 5 days later and after a terrifying emergent c-sec...

In this episode, we will hear from Laura about navigating hospital life and finding the balance between caring for her family and taking care of herself. She focuses on the importance of self care and how it has made her be t...

Friends, you are not going to want to miss this episode! On today's episode of the podcast,we hear about Laura's Birth story and the beginning of her son Trey's journey with congenital Leukemia. Laura shares the raw emotion a...

This episode is sponsored by SmileMakers! On today's episode, Annie Jones, CCLS is our guest host! We will hear from Sarah about her daughter Adalee having an ischemic stroke with no pre-existing conditions. With strokes, the...

This episode is sponsored by SmileMakers Abbie Pabon and Emily Enstad share their motherhood journeys through the pandemic, how it shaped their careers and how they created a company that gives hands on tools to help children...

Today we have a guest co-host AND a guest! Our guest co-host is Sehreen Noorali, and you may remember her from Episode 112 of the podcast. Her younger daughter has some medical needs and has been through neurosurgery. Like Se...

This is a very worthy repost episode, as April is Limb Difference Awareness Month. We first shared Ashlyn's story over a year ago, but I wanted to bring it back. The two things that I continue to take away from this story is ...

Today's guest expert is Jessica Lewin, a child life specialist in the school setting. We talk about some of the key concepts that she wants parents to know are affecting their middle and high schoolers. Jessica and I discuss ...

Today I'm talking with Amy, who discovered her son had a brain tumor after noticing something different about his eye one morning. The brain has a lot of jobs, and it has affected his everyday life in many ways. Amy is an inc...

Today we have another story from a heart mama. I wanted to fit them all into February, but I couldn't quite make it. So we are just creeping into March here with Dimitra and her story. Her son also had transposition of the gr...

Here we are in the last week of February, which is heart month, and I am so honored to bring you Melissa's story. We have discussed other heart defects before, such as tetralogy of fallot and hypoplastic left heart syndrome. ...

Today's guest, Elizabeth, had never heard of PANDAS (Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infection) when her son was diagnosed with it. PANDAS is a tough diagnosis, because some docto...

Today's guest is Maureen, and she found out at her 20 week ultrasound that her daughter had clubfoot. She shares what families have to endure when confronted with a child with clubfoot. You'll hear about B and B (boots and ba...

Today's guest is Betsy, from an organization called Hope for HIE (Hypoxic Ischemic Encephalopathy). HIE refers to brain injury in an infant, and Betsy will share more specifics about the condition and her family's experience ...

As we kick off the new year, my guest Christiana is sharing the story of her son's osteosarcoma. Nathaniel has passed away, but his family created Nathaniel's Childhood Cancer Foundation in his name and legacy. Christiana wal...

It's the 100th episode! Today I'm opening up a bit and letting you get to know more about me as well as more about what a child life specialist does. I will be sharing my thoughts about the holiday season, and then I will an...

My guest today, Kat, is sharing her story as a child and now as an adult with chronic illness. I think it's important for us to change our perspective a bit and hear what the patient has to say. Kat is the community manager a...

My guest today, Samarrah, is sharing her story about her son being diagnosed with a brain tumor. I encourage you to be present as you listen to her story and take the wisdom she is offering. In this episode, we talk about… [1...

My guest today is Carrie Holt. Carrie is one of those people who, when you talk to her, you feel like you've known her your whole life AND it feels like you're there in the room with her. She has such a great perspective on ...

Meet the author, Priscilla Morgan. She gives us exactly what we need to know to start a gratitude journal with kids, without making it a chore. She teaches us how to find the emotional connection with gratitude to make it me...

Today I get to introduce you to Moira, the host of Surviving the Waiting Room - a podcast based on her experiences from learning how to be an advocate for her teenage children as they started to figure out their health issues...