Episodes

Join me for an emotional and insightful conversation as I sit down with Kate Kostolansky in this episode of Child Life On Call. Kate, a dedicated mother and advocate, shares her touching journey of raising her daughter, Charlotte, who battles infantile spasms. In this heartfelt discussion, Kate sheds light on the challenges faced by families dealing with rare medical conditions, emphasizing the importance of parental instincts and advocating for timely medical attention. Discover Kate's inspirin...

In this episode of Child Life On Call, we are honored to host Jennifer Canvasser, the driving force behind the NEC Society, as she shares her poignant journey and advocacy for Necrotizing Enterocolitis (NEC) awareness in the NICU. Join us as Jennifer unveils her personal story and how she transformed her loss into a powerful force for supporting families grappling with NEC. Gain valuable insights into the pivotal role of human milk and early intervention in mitigating the risk of NEC, and the vi...

In this episode, our guest James Robinson will share the keys to living life to its fullest, both inside and outside of the hospital, so that you can provide the result of bringing joy and happiness to your child's life, despite their medical condition. James Robinson, the author of the book "More Than We Expected: 5 Years with A Remarkable Son." On today's episode, he shares his personal experience as a parent of a child with a congenital heart defect. Living in Brooklyn, New York, James and ...

In this episode, you will be able to: Discover the untold journey of NICU parents, gaining insights and understanding into their unique experiences. Uncover the challenges of medically complex pregnancies, and learn strategies for navigating this complex journey with support and resilience. Explore the support systems available for medical motherhood, and find out how to build a network of understanding and empowerment. Gain invaluable insights and practical tips for navigating the complexit...

Join Katie Taylor in an emotional conversation with Mackenzie Carolin as they discuss the unexpected medical journey she faced with her daughter. Learn how Mackenzie navigated the complexities of her child's healthcare needs and discover the importance of trust and human connections during challenging times. This episode of Child Life On Call provides valuable insights and support for parents who find themselves in similar situations. Don't miss this heartwarming and inspiring discussion that hi...

Are you a parent of a child with a medical condition? Join me, Katie Taylor, as I chat with Keeley Machen Schares, a Child Life Specialist, in this special episode of Child Life On Call. Keeley takes us through her incredible journey as a mother to a premature baby with hydrops fetalis and profound hearing loss. From routine ultrasounds to a life-saving diagnosis, Keeley's story will captivate you. Learn about the challenges she faced, the importance of finding the right medical team, and the po...

It's a solo episode this week and our host, Katie Taylor, CCLS, dives in to what she experienced at the American Academy of Pediatrics Conference. Katie talks about her travels to Chicago to train a group of clinicians in Chicago, and then her trip to DC where she had hundreds of conversations with pediatricians from across the globe. What was the overwhelming takeaway? PEDIATRICIANS LOVE CHILD LIFE, y'all! Listen to hear more about what Katie learned as a child life specialist exhibiting at...

This episode is a repost in honor of Spina Bifida awareness month. Are you a parent of a child with spina bifida who is seeking support and guidance to navigate the challenges of raising your child? Are you looking for increased understanding, support, and strategies to help you and your child thrive? Join us as we welcome guest Teresa Crespo, who will be sharing the solution to help you achieve that desired outcome. Get ready to gain valuable insights and practical tips that will empower you as...

We wanted to repost this epsidoe to highlight that October is Learning Disabilities / Dyslexia / Attention Deficit Hyperactivity Disorder Awareness Month. In a world of unexpected twists, sometimes the greatest surprises lie within our own children. Child Life Specialist, Shani Thornton's journey with her son's learning differences took an unforeseen turn, unraveling a mystery that went beyond what anyone could have imagined. But what if this unexpected twist held the key to unlocking their hidd...

In honor of October being Breast Cancer Awareness month we wanted to repost this episode to provide awareness to our community. Breast cancer survivor, Sara Olsher, battles the disease as a single parent, using her experience to empower others and create resources for families facing cancer, in a moving and inspiring episode of the Child Life On Call podcast. In this episode, you will be able to: Explore Sara's firsthand experiences from her breast cancer diagnosis to treatments, offering an i...

My special guest is Ryan Sheedy Meet Ryan Sheedy, an incredible father who, much to his own surprise, found himself immersed in the delightful chaos of caring for twin boys. His world drastically transformed ten years ago, when he moved from Pennsylvania to Bentonville, Arkansas. Not only has Ryan navigated the unexpected challenges of parenting twins, but he has also bravely navigated his son's Costello Syndrome diagnosis. Through it all, he's embraced being a stay-at-home dad, constantly lear...

My special guest is Rhandyl Vinyard, Deonna Wade Rhandyl Vinyard and Deonna Wade are two phenomenal mothers from Texas, each raising disabled children. Drawn together by shared circumstances, their friendship continues to strengthen others walking a similar path. Rhandyl, a physical therapist assistant, is the mother to Remy, who has required intensive medical care from an early age. Her background in healthcare provides a unique perspective into the challenges of raising a disabled child. Deon...

Do you want to become a confident advocate for your child's medical needs? Are you searching for a solution to navigate the complex world of medical care for children with conditions? Join us as we welcome Kayleigh Koehler, a Child Life Specialist who has transformed into a medical parent. She will be sharing valuable insights and strategies on how you can achieve the ultimate goal of becoming a knowledgeable and effective advocate for your child's medical journey. Get ready to embark on a trans...

Welcome to the ChildLife On Call podcast, where I, Katie Taylor, sit down with Kayleigh Koehler, a certified child life specialist, to discuss her journey as a medical mom and a child life specialist in a cardiac ICU. Join us as we dive into Kayleigh's personal story, from her gut intuition during pregnancy to her son's diagnosis, and the emotional challenges she faced along the way. We explore the importance of trusting gut intuition, the complexities of navigating the healthcare system as a pa...

Meet J.R., a parent on a challenging journey. From aggressive behaviors to sensory challenges, she shares her struggles of raising a child with severe special needs. But just when things start to improve, an event occurs which leaves her questioning everything. You will not want to miss this story of resilience and uncertainty. In this episode, you will be able to: Gain insights into the journey of raising a child with significant special needs, and learn how to turn these experiences into gro...

In the world of healthcare, where hope often intertwines with despair, one woman's accidental encounter sparked a revolution of compassion. Casey Baynes, driven by a single twist of fate, unlocked the power of providing support and joy to critically ill children and their families. The story unravels in unexpected ways, leading us down a path where ordinary logistics transformed into extraordinary healing. Brace yourself for a tale that will leave your heart racing and your soul yearning for mor...

Have you ever heard these myths about preparing children for ambulance rides and hospital transfers? Myth 1: Children don't need any special preparation for medical transportation. Myth 2: It's best to keep children in the dark about what to expect during the ride. Myth 3: Distractions like toys or electronics can prevent children from feeling anxious. In this episode, our guest Josh Itano will debunk these myths and share the truth about how to prepare children for a smooth and anxiety-free med...

In a world turned upside down by the pandemic, one Child Life Specialist found herself on a journey she never could have anticipated. But little did she know, a twist of fate was about to lead her down an unexpected path. This story is the catalyst for a groundbreaking virtual Child Life Specialist program. Stay tuned to discover how her resilience and determination transformed the healthcare experience for children and their families, forever changing the landscape of pediatric care. In this e...

A mother fights against time and navigates the emotional rollercoaster of her daughter's lung transplant, as she strives to fulfill her promise while facing the heart-wrenching challenges of the organ transplant process in a race for survival. In this episode, you will be able to: Uncover the intricate realities of pediatric lung transplants and management of exceptional medical conditions. Relate to the heart-rending emotional challenges families wrestle with during the organ transplant proc...

[ Child Life 101] How to Prepare Children for Medical Procedures Does this sound familiar? You try to prepare children for medical procedures, but no matter what you do, they still end up feeling stressed and anxious. You've been told to simply explain the procedure to them, but it's not working. The pain of seeing children scared and overwhelmed during medical experiences is heart-wrenching, and you're desperate to find a better way to help them feel informed and equipped. Watch This Episode ...

If you're feeling overwhelmed, frustrated, and powerless as you try to address your child's unresolved behavioral issues, only to see them persist and worsen, then you are not alone! Despite your best efforts, the actions you may already be taking, such as discipline strategies, counseling, or seeking help from professionals, may not be producing the desired results. Instead, you may be witnessing strained relationships within your family, academic struggles, social isolation, and a constant sen...

Attention, parents! Have you ever come across these myths while seeking ways to support your child's emotional well-being during healthcare experiences? Myth #1: Children are too young to understand and process their emotions. Myth #2: Therapeutic play is just a form of entertainment, not a valuable tool for emotional support. Myth #3: Children will naturally bounce back emotionally after healthcare experiences. Well, today we have an expert guest, Laura Sufka, who will debunk these myths and sh...

If you're feeling overwhelmed and powerless as you watch your teenager's health concerns worsen, despite your efforts to find solutions, then you are not alone! In this episode, you will be able to: Discover why your innate parental instincts can serve as an invaluable guide for your child's health concerns. Unlock the importance of open and constant communication in discerning your child's wellbeing. Recognize how seeking advice from health professionals can be a game-changer when in doubt....

Empowering NICU Parents: Kimberly Reyes Shares Her Advocacy Journey If you're feeling helpless and overwhelmed in your NICU journey, despite trying to be involved and advocate for your baby, then you are not alone! It can be frustrating when your requests and concerns are not heard or acted upon by healthcare providers, and you may feel like you have no control over your baby's care. You may be spending countless hours researching and asking questions, but still feel like you're not making prog...