New Episodes Every Wednesday

Child Development Episodes

Discuss the developmental challenges faced by children with various conditions, highlighting strategies caregivers and professionals can use to support their growth and well-being.
50
Nov. 11, 2020

Episode 50 | Eileen's Story - A son with Recessive Dystrophic Epidermolysis Bullosa

In this episode, Annie, Certified Child Life Specialist, talks to Eilieen. She is the amazing mom of a determined, fun loving, 4-year-old hero named Brady. Brady was diagnosed with Recessive Dystrophic Epidermolysis Bullosa (RDEB). While he inspires all who meets him, his favorite thing is just being a typical boy and being treated as such. After a move from Texas to Colorado to find the best care and environment for him, life shifted and their family became advocates in the RDEB community. Ei...
48
Oct. 13, 2020

Episode 48 | Meg's Story - A daughter with craniosynostosis

Meg, is mom to four children one of whom is living with syndromic craniosynostosis. Her daughter, Avery, who is now six-years-old is proof that children are resilient and capable of so much. She discusses the exhaustion that comes from being the caregiver for a child who requires around the clock care. Meg attributes family (20+ cousins!) constantly surrounding her with love to be one of the biggest parts of their coping. "The first year is so tough, so buckle up. But once it's over, you'll be...
June 10, 2020

Anti-Racism and Diversity in Child Life: An Important Conversation

Katie interviews Meg and Jess, two certified child life specialists who also have dual certifications in rec therapy and nursing! These two ladies host a podcast called Don't Worry Bout My Hair and they are your @friendswithfros! We tackle tough questions that are way overdue in the field of child life: Have you received any feedback or comments from black families regarding challenges due to limited diversity of the hospital staff? What's been the most challenging thing about being a black wom...
39
May 26, 2020

Autism Diagnosis: A Mother's Journey from Anxiety to Acceptance

In this episode, Katie, Certified Child Life Specialist, interviews Jessica, mom to two special needs children and one of which who is on the Autism spectrum. Jessica is also an adult clinical neuropsychologist and also hosts a podcast with her husband called, Thriving in the Midst of Chaos. Jessica discusses their journey to get a diagnosis, how they are coping with virtual therapy during covid19, and provides great resources and information about the Autism community. If you'd like to share ...
35
March 12, 2020

Episode 35 | Talking to kids about the Coronavirus

When it comes to the Coronavirus, how we inform our children is incredibly important. If you're wondering though, how can we talk to our kids when we as adults still don't know exactly what's happening, you're not alone. This episode covers suggestions for age-appropriate language to use as well as general considerations to keep in mind as you talk to your children. Children are looking to adults for honest, easy-to-digest information. Break it down into a way that they can understand.
Jan. 14, 2020

Neuroblastoma: Creating Joy During Childhood Cancer Treatment

In this episode Katie Taylor, Certified Child Life Specialist interviews Tara Geraghty, President and Founder of Making Cancer Fun. Tara is momma to Emily who was diagnosed with Stage 4 Neuroblastoma at just three years old. Tara used positivity and FUN to help herself and her daughter cope with their cancer journey. Tara is an author, webinar host, TedX Talk speaker, and just an all around inspiring person. Follow Making Cancer Fun on Facebook, Twitter and Instagram and follow Tara on Facebook...
28
Oct. 28, 2019

Episode 28 | Lauren's Story - A daughter with Congenital Heart Defects

This is Lauren's Story - A daughter with congenital heart defects on the Child Life On Call Podcast, hosted by Katie Taylor, Certified Child Life Specialist. Little Everly is just over two years and has more fight and life inside of her than most of us could ever dream of. And she's not the only one… prepare to be amazed by big brother too. Their mom, Lauren, shares with us her optimistic perspective even when they've had had their share of complications and setbacks. Lauren mentions resources...
24
March 18, 2019

Episode 23 | Stephanie's Story - A daughter with functional short bowel syndrome

After a long fertility journey and a high risk, stressful, and very sick pregnancy, Stephanie gave birth at 26 weeks due to severe preeclampsia. Stephanie, mom to Adeline, shares her experiences in the NICU and describes Addie's difficulty with digestion. A long road of unknowns eventually led to a diagnosis of functional short bowel syndrome. Stephanie shares her perspective about important topics like how having a child with an "invisible disease" can be a blessing and a curse, how she actuall...
10
April 30, 2018

Episode 22 | Belinda's Story - A son with low muscle tone, epilepsy and autism

Belinda, a mom, certified child life specialist, teacher and creator of ChildLifeConnection.com shares her story with us today on the final episode of season two of the Child Life On Call Podcast. As a cancer survivor herself, Belinda knew that she wanted her life's work to positively impact hospitalized children and thus she became a Child Life Specialist. After getting married and having her first child, she applied her knowledge of child development and expertise with children to her own son...
9
April 23, 2018

Episode 21 | Alex's Story - A daughter born with congenital heart defects and heterotaxy

At Alex's 20-week ultrasound appointment, she and her husband learned that their daughter, Lucy, had heterotaxy and congenital heart defects. From that moment, their lives changed and they became advocates and fighters for their spunky daughter who is now one year old. In this episode, Alex talks about Lucy's birth, surgeries, hospitalizations and ER visits. She talks about how their cardiologist became one of their biggest champions and what a difference the congenital heart defect online comm...
March 19, 2018

Cochlear Implants and Severe Hearing Loss in Newborns

When Lyndsey's newborn daughter failed her initial hearing screening, she wasn't too worried—her older son had also failed the first test. But after a second failed newborn hearing screening, Lyndsey was referred to an audiologist, where she learned her daughter had severe hearing loss. What followed was a journey of emotions, decisions, and hope as her family explored treatment options, including cochlear implants. In this episode, Lyndsey shares: The newborn hearing screening process How she...
1
Feb. 26, 2018

Episode 13 | Nina's Story - A son with craniosynostosis

In this first episode of the second season of this podcast, we hear from a self-proclaimed "crunchy granola mom" Nina, whose fourth child was born with what she calls "a funny shaped head." Nina goes on to describe her son's first few weeks of life and her appointments with her pediatrician and an osteopathic doctor. With little to no help from the osteopathic doctor, she trusted her instincts and returned to her pediatrician who then referred her to a surgeon at Children's National Medical Cen...
8
Aug. 20, 2017

Episode 8 | Part Two of Mandy's Story - A son born with a rare genetic condition

Episode 8 is Part 2 of Mandy and Nolan's story. If you haven't listened to Part 1, head on over to Episode 7 so you have a better understanding and appreciated for Mandy's story. I mentioned that Nolan was scheduled for surgery and I'm sure you're interested in an update… and this is directly from Mandy: The doctors were able to perform a scope of his airway to identify the obstruction that is causing the apnea; however, after getting a closer look at just how constricted his airway is, they dec...
7
Aug. 14, 2017

Episode 7 | Part 1 of Mandy's Story - A son born with a rare genetic condition

Episode 7 features the first part of Mandy's story. Her son, Nolan, was born five weeks early with a host of symptoms which led them to find that he was diagnosed with a condition that only four other people are currently living with. Nolan is the ninth person in the history of medical science that has been diagnosed with Mandibuloacral Dysplasia Type B (Mad B). In part one of Mandy's story, she talks to us about how doctors and specialists eventually came to diagnose Nolan. It ended up being an...
6
Aug. 7, 2017

Episode 6 | Tricia's Story - A daughter diagnosed with Rolandic Epilepsy

Episode 6 features Tricia, a mama who lives in the southwest suburbs of Chicago. Tricia bring a unique perspective and understanding of child development in her experience based on the fact that she has her masters in early childhood development and education, is currently an adjunct faculty member at Depaul University and is also a doula. In this episode, you'll hear Tricia talk about the fight of a lifetime to find a diagnosis for her daughter, Cora, who is now 13 years old. After four and a h...
3
July 10, 2017

Episode 3 | Kim's Story - A son born with Microtia Atresia and hearing loss

In this episode you will hear Kim talk about her experience in finding out that her son had Microtia Atresia, the interesting link to their family history and how that has affected her journey, and the tough decision about how and when to move forward with surgery. Microtia is a congenital deformity where the external ear is underdeveloped, and Atresia is the absence or closure of the external auditory ear canal. The malformation of the middle ear bones may be affected including the narrowing of...