New Episodes Every Wednesday

Caregiver Stories Episodes

Explore personal accounts from parents and caregivers as they share their journeys through the emotional ups and downs of caring for a hospitalized child.
222: A son born at 25 weeks after loss, NICU NP mom and podcaster: Ashley O'Neil
June 25, 2024

222: A son born at 25 weeks after loss, NICU NP mom and podcaster: As…

In this episode host Katie Taylor sits down with Ashley O'Neil, a family nurse practitioner and a NICU mom. Ashley shares her journey when her son, Colin, was born at 25 weeks gestation and the following 183 day NICU stay. L...

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219: 60 Years Later: Reflecting on a Daughter with Ichthyosis
May 21, 2024

219: 60 Years Later: Reflecting on a Daughter with Ichthyosis

"We, we weren't letting those people push us around because, believe it or not, living with us 24 hours a day, we knew more than some of the doctors." - Skip Vilas In this heartfelt episode of the Child Life On Call podcast, ...

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218: How NOT to Give Families Medical Information - A son with CHARGE syndrome, Taylor's Story
May 14, 2024

218: How NOT to Give Families Medical Information - A son with CHARGE…

Today's guest is Taylor Happley, a mom of a child with CHARGE syndrome. "We need to figure out why and how to help these kids get the medical attention that they need." In today's episode, Katie Taylor had an important conver...

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217: Navigating IEPs, Infantile Spasms, NICU & STXBP1 - Erin's Story
May 7, 2024

217: Navigating IEPs, Infantile Spasms, NICU & STXBP1 - Erin's Story

Today's guest is Erin Prosser, an IEP expert consultant and a mom of a daughter diagnosed with STXBP1. "You don't see it coming. Being a rare disease parent hits you like a ton of bricks." In today's episode Katie Taylor had ...

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216: How to talk with Kids about Child Abuse - Jane's Story [Repost]
April 23, 2024

216: How to talk with Kids about Child Abuse - Jane's Story [Repost]

April is Child Abuse Prevention Awareness Month. We have reposted this episode to bring awareness and give you tangible tools to speak with your kids about child abuse. Today's guest expert is Jane Donovan, who is a child abu...

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215: Ruptured Appendix: Emergent Surgery, 6 Days in the Hospital & Struggles to Discharge - Aspen's Story
April 16, 2024

215: Ruptured Appendix: Emergent Surgery, 6 Days in the Hospital & St…

"I've learned so much in this whole process. It's like you have a depth inside of you that resurrects as an advocate and high alert, and it lives inside of you when you need it." -Aspen, Willa's Mom In this episode of Child L...

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214: Sacrifice, Advocacy, Joy: Raising a Son with End Stage Kidney Disease - The Ransome Family's Story
April 9, 2024

214: Sacrifice, Advocacy, Joy: Raising a Son with End Stage Kidney Di…

"Sometimes it's really therapeutic though to remember all that you have gone through because I feel like there are times when we look at each other and I'm like how did we get here?" -Tayler Ransome We're grateful for our spo...

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213: Parents, CCLS, Students: Show Up Exactly As You Are
April 2, 2024

213: Parents, CCLS, Students: Show Up Exactly As You Are

In This Episode: Katie Taylor goes off the beaten path in this special episode to share a profound moment of inspiration that struck her. This episode is a heartfelt message to child life specialists, students, and parents, e...

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212: CCLS Story: 18 Years of Supporting Kidney Families -Julie's Story
March 26, 2024

212: CCLS Story: 18 Years of Supporting Kidney Families -Julie's Story

"As a child life specialist, watching my tiniest patients grow and accomplish so many things is my favorite part of the job." - Julie, Certified Child Life Specialist Episode Summary: In this heartfelt episode of Child Life O...

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211: A Son Born with End-Stage Kidney Disease (Part 1): Lyndsey's Story
March 19, 2024

211: A Son Born with End-Stage Kidney Disease (Part 1): Lyndsey's Sto…

"Having a medically complex child, it's like everything's fine. And then, you know, we have a morning where we've thrown up a lot or our blood pressure is too low, and it just doesn't look good. You just never know what you'r...

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210: Connection, Healing, and Love: Insights from Patrice Karst, Author of The Invisible String
March 13, 2024

210: Connection, Healing, and Love: Insights from Patrice Karst, Auth…

"Love is the most powerful force in the universe, and the invisible string is a testament to the connections that bind us all." - Patrice Karst In this special Child Life Month episode, Katie Taylor sits down with Patrice Kar...

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208: Military Life, Pediatric Complex Care Abroad & Resiliency: Kat's Story
Feb. 27, 2024

208: Military Life, Pediatric Complex Care Abroad & Resiliency: Kat's…

In this profound episode, we join Katie Taylor as she delves into the inspiring journey of a military family navigating pediatric healthcare for their two medically complex children. Through the voice of the remarkable mother...

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205: How to Support Kids who are Grieving, Bittersweet Relationships & Personal Loss
Feb. 6, 2024

205: How to Support Kids who are Grieving, Bittersweet Relationships …

In this episode, we're honored to have Jessica Correnti, a certified child life specialist and a bereaved mother, share her profound insights on grief. Jessica's dual perspective offers a rich understanding of the multifacete...

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204: Caregiver Isolation, Transitioning to Adult Special Needs, and Becoming CapeAble - Marna's Story
Jan. 30, 2024

204: Caregiver Isolation, Transitioning to Adult Special Needs, and B…

"Millie's journey has taken me to the end of myself, but it's been the most beautiful beginning of understanding humanness and how to be compassionate and how to really be kind to other people and take notice that the story t...

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201: Personal Growth Theory, NEC in the NICU and Shielding Siblings - Kathryn's Story
Jan. 9, 2024

201: Personal Growth Theory, NEC in the NICU and Shielding Siblings -…

I'm his mom, and I carried him for almost nine months, and no one loved him more than me. I'm his expert, and I'm going to own that. - Kathryn Whitaker Have you ever found yourself amazed at the strength people find in the to...

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200: Anonymous questions from Instagram, Katie's personal burn story, and reflecting on 2023
Dec. 19, 2023

200: Anonymous questions from Instagram, Katie's personal burn story,…

In this milestone 200th episode, Katie delves into a unique mix of content, answering insightful questions from Instagram, sharing a personal story about her daughter Cameron's burn accident, and reflecting on the impactful m...

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Episode 199 | Kate's Story- A daughter with Infantile Spasms
Dec. 12, 2023

Episode 199 | Kate's Story- A daughter with Infantile Spasms

Join me for an emotional and insightful conversation as I sit down with Kate Kostolansky in this episode of Child Life On Call. Kate, a dedicated mother and advocate, shares her touching journey of raising her daughter, Charl...

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Episode 198 | Jennifer's Story- A son with necrotizing enterocolitis (NEC)
Dec. 5, 2023

Episode 198 | Jennifer's Story- A son with necrotizing enterocolitis …

In this episode of Child Life On Call, we are honored to host Jennifer Canvasser, the driving force behind the NEC Society, as she shares her poignant journey and advocacy for Necrotizing Enterocolitis (NEC) awareness in the ...

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Episode 197 | James' Story- A son with a congenital heart defect
Nov. 28, 2023

Episode 197 | James' Story- A son with a congenital heart defect

In this episode, our guest James Robinson will share the keys to living life to its fullest, both inside and outside of the hospital, so that you can provide the result of bringing joy and happiness to your child's life, desp...

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Episode 196 | Hannah's Story-A son with VACTREL Association
Nov. 14, 2023

Episode 196 | Hannah's Story-A son with VACTREL Association

In this episode, you will be able to: Discover the untold journey of NICU parents, gaining insights and understanding into their unique experiences. Uncover the challenges of medically complex pregnancies, and learn strategie...

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Episode 195 | Mackenzie's Story- A daughter with Severe Tethered Cord and Caudal Regression Syndrome
Nov. 7, 2023

Episode 195 | Mackenzie's Story- A daughter with Severe Tethered Cord…

Join Katie Taylor in an emotional conversation with Mackenzie Carolin as they discuss the unexpected medical journey she faced with her daughter. Learn how Mackenzie navigated the complexities of her child's healthcare needs ...

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Episode 194 | Keeley's Story- A daughter with hydrops fetalis
Oct. 31, 2023

Episode 194 | Keeley's Story- A daughter with hydrops fetalis

Are you a parent of a child with a medical condition? Join me, Katie Taylor, as I chat with Keeley Machen Schares, a Child Life Specialist, in this special episode of Child Life On Call. Keeley takes us through her incredible...

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Episode 192 | [Repost] Teresa's Story- A daughter with Spina Bifida and a Tethered Cord
Oct. 17, 2023

Episode 192 | [Repost] Teresa's Story- A daughter with Spina Bifida a…

This episode is a repost in honor of Spina Bifida awareness month. Are you a parent of a child with spina bifida who is seeking support and guidance to navigate the challenges of raising your child? Are you looking for increa...

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Episode 191 |[Repost] Shani's Story-A child with a learning difference #ADHD #Anxiety #Dyslexia #Dysmorphia
Oct. 10, 2023

Episode 191 |[Repost] Shani's Story-A child with a learning differenc…

We wanted to repost this epsidoe to highlight that October is Learning Disabilities / Dyslexia / Attention Deficit Hyperactivity Disorder Awareness Month. In a world of unexpected twists, sometimes the greatest surprises lie ...

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