Rare Genetic Disease: A Dad's Perspective on His Son's Journey

[1:57] What it's like to be married to Effie Parks

[4:59] Learning about their son's differences

[8:53] Coping with learning about Ford's disability

[12:15] Casey's favorite parts about being Ford's dad

[16:17] What they want medical care teams to know about Ford's condition

[19:15] Connecting with other parents of children with rare disabilities

[21:28] The hardest parts about having a child with a rare genetic condition

[25:13] Casey's advice for other parents in similar situations

[26:34] What Ford has taught Casey about himself

[29:28] Casey's recommended resources