Rare Genetic Condition in Newborns: A Mother's Journey (Part 2)

Episode 8 is Part 2 of Mandy and Nolan's story. If you haven't listened to Part 1, head on over to Episode 7 so you have a better understanding and appreciated for Mandy's story. I mentioned that Nolan was scheduled for surgery and I'm sure you're interested in an update… and this is directly from Mandy: The doctors were able to perform a scope of his airway to identify the obstruction that is causing the apnea; however, after getting a closer look at just how constricted his airway is, they decided they could not safely proceed with the surgery. We are now discussing a more involved approach to the surgery and exploring other options all together. We are disappointed but thankful to be working with a team of doctors so dedicated to finding solutions for our one in a billion patient.