Limb Loss and Tetralogy of Fallot: A Daughter's Dual-Diagnosis Journey
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September 7, 2022
Published Date:
It's not a time to say I'm sorry, It's a time to acknowledge that, yes in fact you had something you did not plan for, a traumatic event. But also you did have a baby and to step into that joy and gratitude and not lose sight of those things.-Jamie Cline
Jamie shares how her daughter Callie has persevered with tetralogy of fallot and later on a limb loss.She learned about her daughter's tetralogy of fallot just hours after having her 7 weeks premature. When Callie turned one, she shares how they came to the decision to do a lower leg amputation. Jamie shares Callie's journey of learning to walk with a prosthetic as well as the emotional journey she embarked on as a mother.
[3:00] Jamie shares about their family and hobbies
[4:50] Close monitoring during Jamie's pregnancy due to her pre-existing type 1 diabetes
[5:37] Callie was born 7 weeks early via c-section
[6:43] Learning of Callie's heart condition, Tetralogy of fallot
[8:30] The grief and anger to follow the initial diagnosis
[10:35] Feeling cheated of hopes and dreams she had
[11:40] Sharing the emotional challenges of others saying they are sorry rather than celebration
[13:12] Callie had to be transferred to a different hospital for the surgery
[15:00] How their community rallied around supported their family
[17:18] Callie went between the NICU and PICU for close to 3 months
[20:40] The best Christmas gift- Callie got to come home for Christmas
[21:40] Noticing Callie's limb difference shortly after birth
[26:05] At 19 months old, Callie had her amputation surgery
[27:30] Decision making process
[30:08] How grief was a big part of Jamie's journey to healing
[32:00] Jamie shares how she took care of her self during this difficult time
[36:00] How Callie has changed their lives and the positive things she has gleaned from being her mother
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