top of page
< Back

CTNNB1 Rare Disease: One Family's Diagnostic Journey

56

January 27, 2021

Published Date:


Katie, Certified Child Life Specialist interviews Effie Parks, mom to Ford who was born with a rare disease called CTNNB1.



  • self-care is non-negotiable

  • she came to the realization that although parenting is different than she envisioned, her son has taught her more than she could ever imagine.



Find other episodes like this one:
bottom of page