
Autism, Low Muscle Tone, and Epilepsy: A Beloved Mentor's Story
130
July 27, 2022
Published Date:
Belinda shares her son's journey with low tone, epilepsy and autism and how her professional and personal experiences collided, giving her an invaluable perspective as a parent and professional. This episode is in our top 5 most downloaded episodes to date.
[4:39] Belinda notices her son is not meeting some major developmental milestones
[5:17] Receiving a low tone diagnosis as an infant
[10:00] Belinda shares a touching moment in her son's journey to run a 5k
[12:39] Finding activities your child likes to incorporate into therapy
[13:34] She gets a phone call from Justins school, Belinda begins to search for answers
[14:57] Additionally, she learns her son is having absent seizures and after a neurology referral learns he has Epilepsy
[15:41] After hearing feedback from her son's school, Belinda decides to homeschool Justin
[19:53] Getting her Masters degree helped her become a stronger advocate for her son and patients
[22:45] In addition to low tone and seizures, Belinda shares about Justin's mild autism spectrum diagnosis at age 5
[24:50] Belinda describes how going back to school was self-care for her
[28:54] Working on self-confidence
[30:09] Justin's amazing attitude and ability to push forward is inspiring to Belinda
If you would like to connect with Belinda, you can email her, or and .
Sign up for our newsletter here.Parents, download our free parent starter kit.
When you download our starter kit, you'll learn how to:
Give medicine to your child without it becoming a wrestling match
Prepare your child (and yourself) for a shot so they can feel less anxious
Create and use a coping plan for any medical appointment or procedure
The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing.
Child life specialists, get affordable PDUs on-demand here.
Shop for your CLOC gear here.
Catch up with CLOC on Instagram, Facebook and meet Katie for a Q+A every Monday at 10 AM CST.